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Posts tagged ‘pediatric hydrocephalus’

0September 1, 2010National Hydrocephalus Awareness Month, 2010, changing the “culture of despair”

1September 1, 2009Hydrocephalus Awareness – all month long!

22q11 abortion acceptance adoption adverse prenatal diagnosis anencephaly arthrogryposis Baby Bennett update benotafraid.net bret baier brett baier carrying to term carrying to term trisomy 13 Celebrity "special baby" stories congential heart defects cystic fibrosis cystic hygroma disabilities disability Down syndrome ectopia cordis Exceeded Medical Expectations expecting a baby with fatal diagnosis faith amidst obstacles families and disability family assistance fatal defect fatal diagnosis fetal anomaly fetal surgery gastroschisis genetic syndrome Good to know healtchare bill heart defects heart surgery holoprosencephaly hydrocephalus IDSC for Life isaiah's promise Joni kelly frey kidney failure kristan hawkins late-term abortion living with trisomy 13 medical hero Medical heroes miracle Miracle Moms misdiagnosis mitochondrial disease mothers nationalized healthcare osteogenesis imperfecta paying for special needs pediatric hydrocephalus perinatal hospice prematurity prenatal diagnosis prenatal partners for life Pure inspiration Reece's Rainbow respite care sarah palin skeletal dysplasia spina bifida Termination told to terminate trisomy 13 trisomy 18 trisomy 18 survivor trisomy 21 turner syndrome Uncategorized
BeNotAfraid.net
Tweets by benotafraidnet
Blogs of interest supportive of our mission
- Trisomy 13 – Patau Syndrome
- Woman to Woman Childbirth Education
Blogs of parents who have carried a baby after a prenatal diagnosis
- Fearfully and Wonderfully Made
- He Will Carry Me
- In His Hands
- Is There Life After Empty & Broken?
- Matthew Nicholas Vawter
Books
- Broken and Blessed, by Cathy Adamkiewicz
- For the Love of Angela, by Nancy Mayer-Whittington
- My Child, My Gift: A Positive Response to Serious Prenatal Diagnosis by Madeline Pecora Nugent
- The Journey of a Lifetime Guidebook, by Tammy Tate, RN
- Waiting for Eli: A Father's Journey from Fear to Faith
Down syndrome
- A Life Worth Living
- IDSC For Life
- Upside of Down USA
Extra-special stuff and services
- A Stitch and a Prayer
- Down Syndrome Footprint
- Lil' Angel Gifts
- Sustaining Grace
- The Littlest Heroes Project
Extra-special support
- 5 Minutes for Special Needs
- Extraordinary Moms Network
- Hopeful Parents
- Prayers for Little Angels
For the bereaved
- 20 Things You Can Do For Those Who Are Grieving
- A Grieving Parent's Prayer
- Back in His Arms Again
- Morning Light Ministry
- My Very Own Angel
- Sufficient Grace
- The Apostolate of Hannah’s Tears
Heart Help
- HLHS Info
- Hypoplastic Right Hearts
- Lauren's Heart
Home
- BeNotAfraid.net
Maternal health help
- Beyond Morning Sickness: Battling Hyperemis Gravidarum
- Charnette Messe: Embracing Life (Pregnancy and Breast Cancer)
On top of things
- BioEdge
- Patricia E. Bauer’s Disability News
- What Sorts of People
Websites for parents looking for life-affirming support (focused diagnoses)
- Hydrocephalus Kids
- Isaiah’s Promise
- Knoah’s (ARC) Achondroplasia Resource Center
- Living with Trisomy 13
- PKS Kids
- Rosie’s Website
Websites for parents looking for life-affirming support (various diagnoses)
- A Child of Promise
- BeNotAfraid.net
- String of Pearls
When there has been an abortion
- Lumina: Hope & Healing after Abortion
Pages
- The Companion Blog to BeNotAfraid.net
May 2024

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