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Hydrocephalus Awareness – all month long!

September 1, 2009

We blogged about the national proclamation several days back. Well here it is is – due to the hard work of the Illions’ family, who have begun their own organization called The Pediatric Hydrocephalus Foundation.illions

One of the goals the Illions’ hope to accomplish through the org is to help get the word out about endoscopic third ventriculostomy, which is an important alternative to traditional shunting. But most of all, they  don’t want any parents to feel that their baby has a hopeless condition. If you have just learned your baby has hydrocephalus, please consider contacting the PHF.  Additionally there are online supports – some working closely with PHF, such as Gabriel’s Life and  Little Madison Rocks, as well as our section for hydrocephalus on BNA.

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