Baby Bennett continues to thrive
Many of us were drawn into the story of the diagnosis and birth of baby Bennett. You may recall, he was not expected to survive. But his parents have given him every opportunity to thrive (which began with the decision to carry him to term). Just look at him now!
Kelly says that he has developed brain tissue. I wonder if parents are told that this is possible? Thankfully, there is a great organization, The Pediatric Hydrocephalus Foundation, which will make sure that parents are given the latest information and the full range of possibilities when a child is prenatally (or postnatally) diagnosed with hydrocephalus.
ABC News took Bennett’s story “national”. Read it, and then please share the story with as many people as you can.
Pittsburgh Mom Determined to Help Son
“What we saw on that screen, the head area had just black,” Frey said of the ultrasound.
A routine ultrasound in 2009 revealed a chilling vision: Where there should have been brain tissue, there was nothing, just black. The fetus was suffering from severe hydrocephalus, which is a buildup of fluid on the brain. Most people are born with the ailment or suffer from it after a severe head injury.
The trauma didn’t stop there. Bennett was also suffering from Dandy Walker Syndrome, a congenital brain malformation of the cerebellum. The cerebellum controls movement.
The doctors told Frey and her husband, Jason, that their son had little chance of surviving past birth.
“It was the deepest grief we have ever known; they’re telling us he is going to die,” Frey said of the diagnoses.
The couple decided to continue with their pregnancy. They say that Bennett’s birth is a miracle. continue