Children with special needs shine light on what is most important
Merry Christmas to all our friends and visitors – May God bless us all! Almost everyone is familiar with Dickens’ classic, A Christmas Carol (Disney has a fabulous version out right now on the big screen). Tiny Tim, whose infirmity and disability is a source of gentleness, grief, and joy at different points throughout the tale, is the one figure who can move the stony heart of Scrooge. Why is that?- it’s something to reflect upon, especially, in this season of love.
Enjoy this story and video collage sent over by the Dad of Chloe, a little girl with Down syndrome. Chloe’s best friend is featured in the article.
Two special needs kids support each other
Note: Earlier this year, we introduced you to Chris and Valerie Grady and their family, of Upper St. Clair. The couple’s two young sons, Drew and Trent, have the rare Batten’s disease, which causes deteriorating brain, nerve and muscle function. It has no known cure. We checked back to see how this extraordinary family celebrates the holidays and share their continuing story of hope.
Val Grady was nervous when the house next door went up for sale in Upper St. Clair.
Her 3-year-old was suffering from increasingly frequent seizures and was losing his motor skills, and she had a year-old toddler as well. She and her husband, Chris, were trying frantically to cope while dreading each new medical evaluation.
“I told Chris, ‘I don’t know if I can handle it if a family with, like, six perfect kids moves in. Our life is so screwed up,’ ” Mrs. Grady said.
“I just want you to know that my daughter has Down syndrome,” Mrs. Kondrich said about a minute into the conversation.
“I had decided that I was just going to make sure people knew up front,” Mrs. Kondrich said. That way there would be no double-takes, no face-making, no surprise when they met little Chloe.
“That was like the biggest relief in my life,” Mrs. Grady said, sitting at her dining room table with Mrs. Kondrich. “I was, like, ‘Phew! We can be normal. We can be real.’ ” continue
And here is a lovely video featuring Chloe and Drew – bff!