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Father transports newborn by train to save him: “There’s hope. My child is a fighter!”

September 1, 2009

We recently posted a story about the oldest survivor of an extremely rare condition called ectopia cordis. Today’s news brings the harrowing story of a father travelling from the remote regions of the Nepalese border with his son – who amazingly survived the trip – to find help. Surgeons in New Delhi have came to the aid of the family – now let’s pray for this little fighter.

Baby born with protruding heart battles for life

art_baby_heart_surgery_cnn

NEW DELHI, India (CNN) — The father of a baby born with his heart protruding from his chest has told CNN about the 1100 km train journey he made to save his son’s life.

Chander Majhi, 24, became a father last week but he had to leave his wife behind in hospital and make a train journey from a remote region along India’s border with Nepal to the capital New Delhi.

His son was born with his heart protruding from his chest, an extremely rare condition called ectopia cordis, which only affects five to eight cases in one million live births.

The parents did not know about the defect until the child was born on August 25 at a government facility in Majhi’s home state of Bihar in eastern India.

“We didn’t go for any (pre-natal) tests,” Majhi told CNN.

Doctors at the government facility referred him and the baby to New Delhi’s All India Institute of Medical Sciences (AIIMS).

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