Mom talks about expecting baby with gastroschisis
There is no organized support group for “gastro babies” that we are aware of. There is the yahoo group mentioned in the article, but it has only sporadic activity.
A rare birth defect and a success story
Story By: David Tauchen
Updated Sun Mar 22, 2009, 09:08 PM MDT
“I was really scared,” said her mother Olivia Williams who learned about the defect after going to the emergency room complaining of abdominal pains. The news she got would be any expecting mother’s worst nightmare.
Gastroschisis can be deadly. There are a whole list of complication associated with the disorder, including infection and organ failure.
“You worry because it could be life or death at any time,” said Williams.
Williams turned to others for information and support, joining a Yahoo group on the internet.
“I felt more comfortable having more information.” continue