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Baby with anencephaly celebrates 1 yr of life

December 18, 2009

It was wonderful to see that  CNN picked up a Colorado story about little Nicholas Coke (“St. Nicholas”, the reporter even called him). It is usually more convenient for the media to present babies with anencephaly as having the most abortion-worthy of conditions, typically in defense of policies protecting late-term abortion and tax-payer funded abortions. Kudos to CNN and the original NBC affiliate for sharing another more positive perspective. Though it is true that most babies with anencephaly will die soon after birth, they are no less worthy of the dignity of being carried to term, and they bestow upon their parents the same dignity  that all babies do – that of being parents.

Baby born without a brain lives for first birthday

By Nicole Vandeputte

Pueblo, Colorado–A baby boy in Pueblo is a living miracle. Nicholas Coke was born without a brain. This week he’s marked a milestone nobody dreamed could happen.
 
Coke was born with a genetic disease called Anencephaly. He had no brain, just a brain stem. His mom Sheena says, “He can’t see, he can’t hear, he can’t suck. He doesn’t crawl, doesn’t sit up.”
 
Most of these babies die within hours, but Nicholas survived a few days, then a few months.
A year later, it’s a true Christmas miracle. He is at a party to celebrate his first birthday. Sheena says, “He’s a miracle. He’s changed so many lives.”
 
He somehow survived without doctors, or tubes. Sheena says he even shows signs of emotion. “He’s smiling. He’s laughed for the first time. It was wonderful to hear him laugh,” says Sheena.
Watch video.
4 Comments leave one →
  1. Carrie permalink
    August 4, 2010 8:52 pm

    Anencephaly is not a “genetic disease”. It is a neural tube defect which can have genetic causes but most of the time is not.

    • benotafraid permalink*
      August 4, 2010 9:35 pm

      You are right, Carrie.

  2. MeinPassat permalink
    January 8, 2012 3:28 pm

    A college classmate of mine conceived an anencephalic infant who she planned to carry to full term, knowing full well the normally poor prognosis. However, toward the end of the second trimester, she developed eclampsia which the doctors were unable to control and at that point she was advised to induce labor (as the Santorums did with their trisomy 18 when Karen Santorum developed a life-threatening infection due to a congenital defect in the baby). Apparently there was a major chance that she would die if she continued the pregnancy. She chose to induce labor. That was her first pregnancy. Today, she is the mother of three healthy sons. Unless you believe that she should have lost her life, sometimes late term abortions (hers and the Santorums) are done to save the mother’s life. It’s not always a matter of convenience.

    • benotafraid permalink*
      January 8, 2012 6:40 pm

      The ethical and only treatment (after a certain point) for that condition is delivery of the baby. The delivery had nothing to do with the baby’s condition. Delivery for preeclampsia can be morally required in pregnancies with perfectly healthy babies (but sadly, not yet viable) as well as those with disabling or fatal conditions. Here is a document which may help you understand the difference between early induction as treatment and early induction as abortion. http://ncbcenter.org/page.aspx?pid=482&storyid1277=80&ncs1277=3

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